In recognition of International Albinism Awareness Day on June 13, we highlight the inspiring story of Masa Simo, a dedicated young man whose perseverance and commitment to advocacy continue to make a difference. Hailing from the island of Aneityum in TAFEA Province, Masa is a 21-year-old Australia Awards scholar currently pursuing a Bachelor of Arts in Psychology at Deakin University, Australia. Born with Oculocutaneous Albinism Type 2, Masa’s journey is a powerful example of determination, family support, and the impact of inclusive education.
Masa began his educational journey at Freshwater Kindy, later transferring to Central School, where he completed both his primary and secondary education. Despite the challenges associated with his visual impairment and the widespread misunderstandings surrounding albinism, he excelled academically. He graduated with the South Pacific Form Seven Certificate (SPFSC) in 2022 and received awards in History and Geography. This success was made possible through the dedicated support of his family and school staff, who worked closely together to provide necessary accommodations—such as extra time in examinations, enlarged digital notes, and dimly lit exam settings.
Masa’s interest in psychology was sparked by his lived experience of being visibly different. His early observations of social exclusion and the subtle ways people treat those who stand out led him to ask deeper questions about human interaction and mental wellbeing. “Psychology to me is my tool to social transformation in Vanuatu,” he explains, noting his aspiration to return home and help improve inclusivity in education and beyond. He aims to ensure that others with albinism or similar conditions are empowered to pursue their goals.
Receiving the Australia Awards scholarship has been transformative. It has not only alleviated financial burdens but has also supported Masa’s growing independence. The scholarship includes funding for assistive technologies, training, and coordination with the university to ensure his needs are met. Deakin University’s Disability Resource Centre has been instrumental in drafting an access plan tailored to Masa, allowing him to focus fully on his studies.
Masa actively challenges common misconceptions about albinism, including the false beliefs that it affects intelligence, is contagious, or that all people with albinism have red eyes. He also highlights that, with proper protection, individuals with albinism can enjoy life outdoors.
To other young people with albinism, Masa offers a message of hope and strength: “You are not alone. Your condition does not define your future. Keep pushing forward, for you and I are paving the way for others yet to come.”
Masa Simo’s story is a profound reminder of the importance of inclusion, understanding, and the transformative power of education.